Journal Articles

This page contains journal articles published by Center for Bioethics and Social Justice faculty and their collaborators over the last three years (2020-present). DOIs linked in each citation will open in a new window. For journal articles published prior to 2020, visit our blog, or visit our faculty webpages for selected publications and CVs.

Articles by Year


Morgan LJ, Pham MT. Examining right to try practices. Journal of Medical Ethics. Epub November 14, 2023. DOI: 10.1136/jme-2023-109600.

Fleck LM. Teaching Bioethics Today: Waking from Dogmatic Curricular Slumbers. Cambridge Quarterly of Healthcare Ethics. 2023:1-8. Epub November 9, 2023. DOI: 10.1017/S0963180123000178.

Pham MT, Campbell TA, Dorfman N, Torgerson L, Kostick-Quenet K, Blumenthal-Barby J, Storch EA, Lázaro-Muñoz G. Clinician perspectives on levels of evidence and oversight for deep brain stimulation for treatment-resistant childhood OCD. Journal of Obsessive-Compulsive and Related Disorders. October 2023;39:100830. Epub August 23, 2023. DOI: 10.1016/j.jocrd.2023.100830.

Merner AR, Kostick-Quenet K, Campbell TA, Pham MT, Sanchez CE, Torgerson L, et al. Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial. Brain Stimulation. July-August 2023;16(4):990-998. DOI: 10.1016/j.brs.2023.06.007.

Fleck LM. The Dobbs Decision: Can It Be Justified by Public Reason? Cambridge Quarterly of Healthcare Ethics. July 2023;32(3):310-322. DOI: 10.1017/S0963180122000822.

Fleck LM. Abortion and “Zombie” Laws: Who Is Accountable? Cambridge Quarterly of Healthcare Ethics. July 2023;32(3):307-308. DOI: 10.1017/S0963180122000810.

Fleck LM, Dave A. Multi-cancer early detection screening tools: A dream come true or a nightmare in the offing. Journal of Clinical Oncology. 2023;41(16_suppl):e18926-e18926. Epub May 31, 2023 [meeting abstract]. DOI: 10.1200/JCO.2023.41.16_suppl.e18926.

Fleck LM. ECMO: What Would a Deliberative Public Judge? The American Journal of Bioethics. June 2023;23(6):46-48. Epub May 23, 2023. DOI: 10.1080/15265161.2023.2201197.

Fleck LM. Abortion, Artificial Wombs, and the “No Difference” Argument. The American Journal of Bioethics. May 2023;23(5):94-97. Epub May 2, 2023. DOI: 10.1080/15265161.2023.2191019.

Kameswaran V, Y V, Marathe M. 2023. Advocacy as Access Work: How People with Visual Impairments Gain Access to Digital Banking in India. Proceedings of the ACM on Human-Computer Interaction. April 2023;7(CSCW1):Article 120, 23 pages. DOI: 10.1145/3579596.

Haimson OL, Marathe M. Uncovering Personal Histories: A Technology-Mediated Approach to Eliciting Reflection on Identity Transitions. ACM Transactions on Computer-Human Interaction. April 2023;30(2):Article 23, 28 pages. DOI: 10.1145/3504004.

Pham MT, McCurdy J. Who’s Experience, Which Liability? The American Journal of Bioethics. January 2023;23(1):41-43. Epub January 3, 2023. DOI: 10.1080/15265161.2022.2146804.


Beygui NC, Cascio MA. Treating Eating Disorders in Patients with Autism: Should Treatment Standards be Implemented on a Spectrum? Practice Innovations. December 2022;7(4):342-356. DOI: 10.1037/pri0000193.

Cascio A, Ferrand A, Racine E, St-Hilaire M, Sanon P-N, Gorgos A, Wintermark P. Discussing brain magnetic resonance imaging results for neonates with hypoxic-ischemic encephalopathy treated with hypothermia: A challenge for clinicians and parents. eNeurologicalSci. December 2022;29:100424. DOI: 10.1016/j.ensci.2022.100424.

Olomu A, Tikaria R, Kelly-Blake K, Hart-Davidson W, Wang L, Alroshood Z, Israel A, Holmes-Rovner M. Type 2 Diabetes Patient Activation and mHealth Interventions Decreased Cardiovascular Disease Risk. The American Journal of Managed Care. November 2022;28(11): e392-e398. DOI: 10.37765/ajmc.2022.89263.

Heung S, Phutane M, Azenkot S, Marathe M, Vashistha A. Nothing Micro About It: Examining Ableist Microaggressions on Social Media. ASSETS '22: Proceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility. October 2022;Article No. 27:1-14. DOI: 10.1145/3517428.3544801.

Knopes J, Cascio A. Beyond Competence: Efficiency in American Biomedicine. Culture, Medicine, & Psychiatry. Epub September 2022. DOI: 10.1007/s11013-022-09806-0.

Pham MT, Pouratian N, Feinsinger A. Engagement, Exploitation, and Human Intracranial Electrophysiology Research. Neuroethics. October 2022;15(3). Epub August 13, 2022. DOI: 10.1007/s12152-022-09502-1.

Pinnamaneni M, Payne L, Jackson J, Cheng C-I, Cascio MA. Disparities in Chronic Physical Health Conditions in Sexual and Gender Minority People using the United States Behavioral Risk Factor Surveillance System. Preventive Medicine Reports. August 2022;28:101881. DOI: 10.1016/j.pmedr.2022.101881.

Lázaro-Muñoz G, Pham MT, Muñoz KA, Kostick-Quenet K, Sanchez CE, Torgerson L, et al. Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost. Brain Stimulation. September 2022;15(5):1029-1036. Epub August 1, 2022. DOI: 10.1016/j.brs.2022.07.051.

Olomu A, Kelly-Blake K, Hart-Davidson W, Gardiner J, Luo Z, Heisler M, Holmes-Rovner M. Improving diabetic patients’ adherence to treatment and prevention of cardiovascular disease (Office Guidelines Applied to Practice—IMPACT Study)—a cluster randomized controlled effectiveness trial. Trials. 2022;23, 659. Epub August 15, 2022. DOI: 10.1186/s13063-022-06581-6.

Fleck LM. Full Reciprocity: An Essential Element for a Fair Opt-Out Organ Transplantation Policy. Cambridge Quarterly of Healthcare Ethics. July 2022;31(3):310-320. DOI: 10.1017/S0963180121001006.

Fleck LM, Ward A. Altruistic Organ Donation: On Giving a Kidney to a Stranger. Cambridge Quarterly of Healthcare Ethics. July 2022;31(3):395-399. DOI: 10.1017/S0963180121001080.

Tawfik HE, Cascio MA, Gomaa N. Recommendations for implementing value-based practice in medicine. The Clinical Teacher. June 2022;19(3):192-196. DOI: 10.1111/tct.13482.

Bogdan-Lovis E, Zhuang J, Goldbort J, Shareef S, Bresnahan M, Kelly-Blake, K, Elam K. Do Black birthing persons prefer a Black health care provider during birth? Race concordance in birth. Birth. 2022;00:1-9. Epub May 30, 2022. DOI: 10.1111/birt.12657.

Kursav MN, Hos R, Sweeder RD, Valles SA. Mind the Gap: Understanding the Disconnect Between Student Services Offered and Used. Change: The Magazine of Higher Learning. 2022;54(3):40-47. Epub May 5, 2022. DOI: 10.1080/00091383.2022.2054187.

Cascio MA, Racine E. Do different kinds of minds need different kinds of services? Qualitative results from a mixed-method survey of service preferences of autistic adults and parents. Neuroethics. April 2022;15(13): unpaginated. DOI: 10.1007/s12152-022-09487-x.

Bogdan-Lovis E, Kelly-Blake K, Jiang W. “On the Shoulders of Giants: A Reckoning with Social Justice,” in A Critical Moment in Bioethics: Reckoning with Anti‐Black Racism through Intergenerational Dialogue, ed. Fletcher FE, Ray KS, Brown VA, Smith PT, special report, Hastings Center Report. March-April 2022;52(S1):S72-S78. DOI: 10.1002/hast.1377.

McCurdy J. “Colonial Geographies, Black Geographies, and Bioethics,” in A Critical Moment in Bioethics: Reckoning with Anti‐Black Racism through Intergenerational Dialogue, ed. Fletcher FE, Ray KS, Brown VA, Smith PT, special report, Hastings Center Report. March-April 2022;52(S1):S66-S68. DOI: 10.1002/hast.1375.

Montemayor J, Sarva H, Kelly-Blake K, Cabrera LY. Deep Brain Stimulation for Parkinson’s Disease: Why Earlier Use Makes Shared Decision Making Important. Neuroethics. July 2022;15(2). Epub April 24, 2022. DOI: 10.1007/s12152-022-09496-w.

Aspler J, Harding KD, Cascio MA. Representation Matters: Race, Gender, Class, and Intersectional Representations of Autistic and Disabled Characters on Television. Studies in Social Justice. March 2022;16(2):323-348. DOI: 10.26522/ssj.v16i2.2702.

Cascio MA, Racine E. Autism service preferences of parents/guardians and autistic adults in five countries. Autism Research. March 2022;15(3):570-585. DOI: 10.1002/aur.2667.

Valles SA. Philosophy of Population Health: Philosophy for a New Public Health Era by Sean Valles: Reply by the Author. Studies in History and Philosophy of Science. February 2022;91:322-323. DOI: 10.1016/j.shpsa.2021.12.006.

Scavarda A, Cascio MA. Embracing and rejecting the medicalization of autism in Italy. Social Science & Medicine. February 2022;294:114728. DOI: 10.1016/j.socscimed.2022.114728.

Fleck LM, Francis L. Should Whole Genome Sequencing be Publicly Funded for Everyone as a Matter of Healthcare Justice? Cambridge Quarterly of Healthcare Ethics. January 2022;31(1):5-15. DOI: 10.1017/S0963180121000426.

Fleck LM. Precision medicine and the fragmentation of solidarity (and justice). Medicine, Health Care and Philosophy. June 2022;25(2):191-206. Epub January 10, 2022. DOI:


Marathe M, Yi Y, Su CH, Chang TW, Marcu G. Tedious Versus Taxing: The Nature of Work in a Behavioral Health Context. Proceedings of the ACM on Human-Computer Interaction. 5(CSCW2):302, 1-24. Epub October 18, 2021. DOI: 10.1145/3476043.

Cascio MA. “Asperger’s Syndrome Does Not Exist”: The Limits of Brain-Based Identity Discourses around Asperger’s Syndrome and Autism in Italy. BioSocieties. June 2021;16(2):196-224. DOI: 10.1057/s41292-020-00191-8.

Valles SA. Race and Ethnicity Are Not Like Other Risk Factors: Applying Structural Competency and Epistemic Humility in the Covid-19 Pandemic. Philosophy of Medicine. 2(1). Epub June 30, 2021. DOI: 10.5195/philmed.2021.52.

Fleck LM. Alzheimer's and Aducanumab: Unjust Profits and False Hopes. Hastings Center Report. July-August 2021;51(4):9-11. Epub June 22, 2021. DOI:

Racine E, Kusch S, Cascio MA, Bogossian A. Making autonomy an instrument: a pragmatist account of contextualized autonomy. Humanities & Social Sciences Communications. Epub June 2021. 8:139. DOI: 10.1057/s41599-021-00811-z.

Cascio MA, Weiss JA, Racine E. Making autism research inclusive by attending to intersectionality: A review of the research ethics literature. Review Journal of Autism and Developmental Disorders. March 2021;8(1):22-36. DOI: 10.1007/s40489-020-00204-z.

Cascio MA, Weiss JA, Racine E. Empowerment in Decision-Making for Autistic People in Research. Disability & Society. February 2021;36(1):100-144. DOI: 10.1080/09687599.2020.1712189.

Sweeder RD, Kursav MN, Valles SA. A Cohort Scholarship Program that Reduces Inequities in STEM Retention. Journal of STEM Education: Research and Innovation. January-March 2021;22(1):5-13.

Blacksher E, Valles SA. “White Privilege, White Poverty: Reckoning with Class and Race in America,” in Democracy in Crisis: Civic Learning and the Reconstruction of Common Purpose, ed. Gregory E. Kaebnick et al., special report, Hastings Center Report. January-February 2021;51(S1):S51-S57. DOI: 10.1002/hast.1230.

Marathe M, Toyama K. The Situated, Relational, and Evolving Nature of Epilepsy Diagnosis. Proceedings of the ACM on Human-Computer Interaction. 4(CSCW3):217, 1-18. Epub January 5, 2021. DOI: 10.1145/3432916.

Scavarda A, Cascio MA, Quaglia V. Fare ricerca qualitativa con persone con disabilità: possibili sfide e benefici [Doing qualitative research with disabled people: potential challenges and benefits]. Welfare & Ergonomia. 2021(1):117-127. DOI: 10.3280/WE2021-001011.


Adashi EY, Burgess MM, Burall S, Cohen IG, Fleck LM, Harris J, Holm S, Lafont C, Moreno JD, Neblo MA, Niemeyer SJ, Rowe EJ, Scheufele DA, Tetsa PF, Vayena E, Watermeyer RP, Fung A. Heritable Human Genome Editing: The Public Engagement Imperative. The CRISPR Journal. December 2020;3(6):434-439. DOI: 10.1089/crispr.2020.0049.

Valles SA. The predictable inequities of COVID-19 in the US: Fundamental causes and broken institutions. Kennedy Institute of Ethics Journal. September/December 2020;30(3-4):191-214. DOI: 10.1353/ken.2020.0012. [Special Double Issue on COVID-19]

Fleck LM. Some Lives Matter: The Dirty Little Secret of the U.S. Health Care System. Hastings Center Report. September-October 2020;50(5):3-4. Epub October 23, 2020. DOI: 10.1002/hast.1176.

Wang L, Pezeshkian K, Rayamajhi S, Herzallah K, Al-abcha A, Olomu A, Kelly-Blake K, Yu E, Wang DH. Relationship between blood pressure and kidney diseases in large randomized controlled trials: secondary analyses using SPRINT and ACCORD-BP trials. Journal of Human Hypertension. Epub October 22, 2020. DOI: 10.1038/s41371-020-00430-2.

Miller DJ, Cascio MA, Rosca MG. Diabetic Retinopathy: The Role of Mitochondria in the Neural Retina and Microvascular Disease. Antioxidants. October 2020;9(10):905. DOI: 10.3390/antiox9100905.

Cascio MA, Weiss JA, Racine E, the Autism Research Ethics Task Force. Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities. Autism. October 2020;24(7):1676-1690. DOI: 10.1177/1362361320918763.

Cascio MA, Weiss JA, Racine E. Person-oriented research ethics to address the needs of participants on the autism spectrum. Ethics & Human Research. September-October 2020;42(5):2-16. DOI: 10.1002/eahr.500064.

Bresnahan M, Goldbort J, Zhuang J, Bogdan-Lovis E, Yan X. Promoting Sustained and Exclusive Breastfeeding among Chinese American Pregnant Women. Journal of Health Communication. Epub Sept 30, 2020. DOI: 10.1080/10810730.2020.1822471.

Goldbort J, Bresnahan M, Zhuang J, Bogdan-Lovis E, Park S. Breastfeeding but not Exclusively: Exploration of Chinese American Mothers’ Infant Feeding Practices. Journal of Human Lactation. Epub Sept 22, 2020. DOI: 10.1177/0890334420948451.

Bogdan-Lovis E. The Trip to the Dentist. Narrative Inquiry in Bioethics. Summer 2020;10(2):100-103. Epub Sept 2, 2020. DOI: 10.1353/nib.2020.0031.

Valles SA. The dynamics of public health responsibility: A commentary on “Public health and precarity” by Michael D. Doan and Ami Harbin. IJFAB: International Journal of Feminist Approaches to Bioethics. Fall 2020;13(2):135-140. Epub September 1, 2020. [Special Issue: Shaping a More Just Bioethics: A Celebration of the Work of Susan Sherwin]

Fleck LM. Commentary: Medical Ethics: A Distinctive Species of Ethics. Cambridge Quarterly of Healthcare Ethics. July 2020;29(3):421-425. DOI: 10.1017/S0963180120000158.

Marathe M. Seizure aesthetics: Temporal regimes and medical technology in epilepsy diagnosis. Time & Society. May 2020;29(2):420-443. DOI: 10.1177/0961463X20908079.

Cascio MA, Motta-Ochoa R, Teachman G, Grond F, Tembeck T, Blain-Moraes S, Park M. What’s at Stake with Biomusic? Ethical Reflections on an Emerging Technology. Journal of Humanities in Rehabilitation. Epub May 2020 at

Marathe M, Chandra P. Officers Never Type: Examining the Persistence of Paper in e-Governance. CHI '20: Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. April 2020:1-20. Epub April 23, 2020. DOI: 10.1145/3313831.3376216.

Fleck LM. Just caring: screening needs limits. Journal of Medical Ethics. April 2020;46(4):253-254. Epub October 29, 2019. DOI: 10.1136/medethics-2019-105884.

Silva O, Cascio MA, Racine E. Person-Oriented Research Ethics and Dementia: The Lack of Consensus. Anthropology & Aging. March 2020;41(1):31-51. DOI: 10.5195/aa.2020.211.

Cascio MA, Grond F, Motta-Ochoa R, Tembeck T, Ten Veen D, Blain-Moraes S. Working Together: Ethnographic Observations on Participatory Design Involving Adults with Autism. Human Organization. Spring 2020;79(1):1-12. DOI: 10.17730/0018-7259.79.1.1.

Racine E, Cascio MA. Commentary: The False Dichotomy Between Empirical and Normative Bioethics. AJOB Empirical Bioethics. February 2020;11(1):5-7. DOI: 10.1080/23294515.2019.1705429.

Cabrera LY, Kelly-Blake K, Sidiropoulos C. Perspectives on Deep Brain Stimulation and Its Earlier Use for Parkinson’s Disease: A Qualitative Study of US Patients. Brain Sciences. January 2020;10(1):34. DOI: 10.3390/brainsci10010034.