Center for Ethics and Humanities
in the Life Sciences

College of Human Medicine

 

 

2016-2017 Bioethics Brownbag & Webinar Series

Sept 28 calendar square

Ethics and Children with Differences in Sex Development and Gender Nonconformity

Joel E. Frader, MD, MA
Professor of Pediatrics and Professor of Bioethics and Medical Humanities
Northwestern University
Medical Director, Bridges Pediatric Palliative Care Program
Lurie Children’s Hospital of Chicago

September 28, 2016
12 - 1 pm; C102 Patenge Room, East Fee Hall

Event Flyer
Blog Post
View Recorded Webinar

Abstract
Society once considered children born with atypical genital anatomy to be freaks of nature. Until recently, doctors labeled these children “hermaphrodites” and urged early appearance-altering surgery. While times have changed, somewhat, medical interventions continue despite mounting evidence of long-term harms associated with both medical and surgical “treatment.” In the last few years, family, public, and medical attention has increasingly focused on children who feel trapped in the body of the “opposite” sex and wish to live as the other gender. Controversy continues about how often these feelings persist into adulthood and when to use medical interventions, such as hormone blocking to prevent full pubertal development, to support the gender nonconformity. When should society constrain clinicians from intervening in these contentious arenas?

Bio
Joel Frader, M.D., is the A Todd Davis Professor of General Academic Pediatrics and Professor of Bioethics and Medical Humanities at Northwestern University’s Feinberg School of Medicine. He is the Medical Director of the Pediatric Palliative Care Program at Lurie Children’s Hospital in Chicago. He received a B.A. from Columbia University (1970), a M.D. from Tufts (1974), and a M.A. in Sociology from the University of Pennsylvania (1980) where he was a Robert Wood Johnson Clinical Scholar. He is active in and served in leadership positions for national organizations concerned with pediatrics and bioethics. He teaches, consults and conducts research in bioethics and palliative care, focusing on ethical issues involving children in the health care system and innovation in health care. He has special interest in ethics in organ transplantation, children with differences in sexual development (intersex) and gender nonconformity, decision making at the end of life, and the ethics of human subjects research.

 

Oct 19 calendar square

Choosing to Test: Dr. A. P. Satterthwaite and the First Birth Control Pill Clinical Trials in Humacao, Puerto Rico

Kathryn Lankford
Doctoral Student
Department of History
Michigan State University

October 19, 2016
12 - 1 pm; C102 Patenge Room, East Fee Hall

Event Flyer
Blog Post
View Recorded Webinar *Video has closed captions

Abstract
How did Adaline Pendleton Satterthwaite, an obstetrician-gynecologist (OB-GYN) working at a Protestant mission hospital in Puerto Rico, become one of the key architects of the first birth control pill? In 1952, Satterthwaite left the continental United States and went to Puerto Rico to work as an OB-GYN at Ryder Memorial Hospital in Humacao. She continued her work there through the early 1960s, but in 1957 she took on an additional job as Director of Family Planning Clinic and Research in Contraceptive Methods. In this capacity, Satterthwaite oversaw clinical trials of G.D. Searle & Co.’s Enovid, the first Food and Drug Administration approved oral contraceptive. This talk will examine Satterthwaite’s personal and professional reasons for bringing the trials to Humacao, Puerto Rico and demonstrate her central, if understudied, role in the development of Enovid.

Bio
Kathryn Lankford is a doctoral student in the Department of History at Michigan State University. She is broadly interested in the histories of medicine and science, gender and sexuality, and empire in the United States and Latin America. Specifically, Kathryn’s current research examines clinical trials of contraceptives in Puerto Rico during the mid-twentieth century. Before entering the PhD program in history at MSU, she received a B.S. in Biology from the University of West Georgia.

 

Nov 9 calendar square

Trust and the Learning Health System

Jodyn Platt, MPH, PhD
Assistant Professor
Division of Learning and Knowledge Systems
Department of Learning Health Sciences
University of Michigan Medical School

November 9, 2016
12 - 1 pm; C102 Patenge Room, East Fee Hall

Event Flyer
Blog Post
View Recorded Webinar *Video has closed captions

Abstract
Data sharing on a large scale is integral to emerging national initiatives such as learning health systems and precision medicine. Realizing the vision of learning health systems, “in which knowledge generation is so embedded into the core of the practice of medicine that it is a natural outgrowth and product of the healthcare delivery process and leads to continual improvement in care” requires a “trust fabric” to integrate policy and practice in health care, public health, and research. However, as increased data sharing stretches the currently disjointed regulatory and policy environment, the texture and resilience of this trust fabric will be challenged in its capacity to protect the public and its vulnerable populations, and to assure data will be used in ways that reflect societal values. What will it take to trust the health system with all that information? This presentation will examine these tensions and dynamics. Based on preliminary data from the clinic and the community, Dr. Platt will discuss a proposed a framework for trust to guide decision-making for local, state, and national learning health systems.

Bio
Jodyn Platt is an Assistant Professor trained in medical sociology and health policy. Her research currently focuses on informed consent in cancer and genomic studies, and the Ethical, Legal, and Social Implications (ELSI) of public health genetics, newborn screening, and learning health systems. She is interested in understanding what makes learning health systems trusted and the pathways for achieving and sustaining trust through community engagement using qualitative and survey methods.

 

Jan 18 calendar square

Covert Costs of Racial and Ethnic Concordance in the Medical Workforce

Karen Kelly-Blake, PhD
Assistant Professor
Center for Ethics and Humanities in the Life Sciences
Department of Medicine
Michigan State University College of Human Medicine

Libby Bogdan-Lovis, MA
Assistant Director
Center for Ethics and Humanities in the Life Sciences
Michigan State University College of Human Medicine

January 18, 2017
12 - 1 pm; C102 Patenge Room, East Fee Hall

Event Flyer
Blog Post
View Recorded Webinar

Abstract
Over the past century US medical workforce demographics have shifted. Moving away from a white male dominated profession, there is a welcomed push towards increasing gender, ethnic, racial and linguistic representation. Commonly, that push is linked to notions of desirable doctor/patient identity matching - described here as “concordance.” That demographic shift is accompanied by policy initiatives and rhetoric shaping the professional futures of Native American, African American, and Latino underrepresented minority (URM) physicians. Do these policy initiatives carry social costs that inadvertently influence URM’s futures in the medical workforce? This analysis considers the nature of medical workforce policy strategies. Findings suggest that selectively placing service expectations not similarly placed on their non-minority physician colleagues along with unexamined assumptions of racial/ethnic concordance between patient and physician may place an undue burden on URMs.

Bio
Dr. Kelly-Blake is an Assistant Professor in the Center for Ethics and the Department of Medicine. Ms. Bogdan-Lovis is the Assistant Director for the Center for Ethics. Bogdan-Lovis and Kelly-Blake are co-leading a multi-institutional research project on Doctor-patient Race/Ethnic Concordance in the Medical Workforce. They are interested in unpacking the complexities surrounding underrepresented minority service to the underserved and how that service may distract those physicians from pursuing other medical professional opportunities.

 

Feb 15 calendar square

Recurrent and Neglected Ethical Issues in the Psychiatric Brain Stimulation Discussion

Laura Y. Cabrera, PhD
Assistant Professor of Neuroethics
Center for Ethics and Humanities in the Life Sciences
Department of Translational Science & Molecular Medicine
Michigan State University College of Human Medicine

February 15, 2017
12 - 1 pm; C102 Patenge Room, East Fee Hall

Event Flyer
Blog Post
View Recorded Webinar

Abstract
What are key ethical concerns surrounding the use of psychiatric deep brain stimulation (DBS)? Are those concerns shared broadly for all aspects of DBS or alternatively are they specific to the intended targeted use of that intervention? Dr. Cabrera will discuss results from a recent study conducted by a multidisciplinary research team in which they examined ethical issues discussed in both the scientific and ethics literature around psychiatric DBS. Dr. Cabrera will make the case that understanding the ethics of DBS for psychiatric interventions provides important insight into the way in which ethical concerns for a single technology might vary depending on their intended use.

Bio
Dr. Cabrera is an Assistant Professor of Neuroethics at the Center for Ethics and Humanities in the Life Sciences. She is also a Faculty Affiliate at the National Core for Neuroethics at University of British Columbia. Her research focuses on the exploration of attitudes, perceptions and values of the general public toward neurotechnologies, as well as the normative implications of using neurotechnologies for medical and non-medical purposes. She received a BSc in Electrical and Communication Engineering from the Instituto Tecnológico de Estudios Superiores de Monterrey (ITESM) in Mexico City, an MA in Applied Ethics from Linköping University in Sweden, and a PhD in Applied Ethics from Charles Sturt University in Australia. Her career goal is to pursue interdisciplinary neuroethics scholarship, provide active leadership, and train and mentor future leaders in the field.

 

Mar 22 calendar square

The Choice to Become a Research Subject: A First-Person Perspective

Rebecca Dresser, JD
Professor of Law
Washington University in St. Louis

March 22, 2017
12 - 1 pm; C102 Patenge Room, East Fee Hall

Event Flyer
Blog Post
View Recorded Webinar

Abstract
Patients with serious illnesses are often invited to participate in clinical trials. After being diagnosed with advanced cancer, I became one of those patients. I had to choose between two options: a treatment regimen my doctors had recommended, or a trial evaluating different treatments for my disease. As someone who had taught and written about research ethics, and a long-time member of an Institutional Review Board, I was in some ways better prepared than many patients are to make this choice. And I knew about the important health benefits that come from research, as well as the arguments that patients have a duty to participate in research. Nevertheless, I decided not to enroll in the trial. Was this a defensible choice, or did I have a responsibility to contribute to a study that could help future patients in my situation?

Bio
Since 1983, Rebecca Dresser has taught medical and law students about issues in end-of-life care, biomedical research, genetics, assisted reproduction, and related topics. She has been a member of the Washington University in St. Louis faculty since 1998. Her newest book, Silent Partners: Human Subjects and Research Ethics, calls for including experienced study subjects in research ethics deliberations. She is also the author of When Science Offers Salvation: Patient Advocacy and Research Ethics and editor of Malignant: Medical Ethicists Confront Cancer. From 2002-2009, she was a member of the President’s Council on Bioethics and from 2011-2015, she was a member of the National Institutes of Health Recombinant DNA Advisory Committee.

 

Apr 19 calendar square

Social Determinants of Behavioral Health

C. Debra Furr-Holden, PhD
C.S. Mott Endowed Professor of Public Health, Division of Public Health
Professor, Department of Epidemiology and Biostatistics
Director, Flint Center for Health Equity Solutions
MSU co-Director, Healthy Flint Research Coordinating Center
Michigan State University College of Human Medicine

April 19, 2017
12 - 1 pm; C102 Patenge Room, East Fee Hall

Event Flyer
Blog Post
View Recorded Webinar

Abstract
It is well established that place matters with respect to health and health outcomes. In behavioral health studies of violence, alcohol and other drug use, and mental health, there is growing evidence that environmental risk and social determinants are strong predictors of behavior in highly disordered environments. In fact, they may be more salient predictors of high-risk behavior than individual-level risk factors. The field of health equity research studies the context where people live, work, and play – i.e., where they experience health. Health equity research examines how the environment shapes and influences opportunities for optimal/sub-optimal health and considers related structural and policy interventions to address both built and social environments. Dr. Furr-Holden will provide examples of innovative environmental assessment methods that offer policy-relevant approaches to address the environment and environmental risk. In particular, highlighting policy-based research and implementation efforts in Flint, Michigan and the larger Michigan Department of Health and Human Services Region 5. Such action-oriented research builds on advancements in the field of geographic information systems and offers promising research, service, and advocacy integration in health equity and behavioral health promotion.

Bio
Dr. Debra Furr-Holden is a drug and alcohol dependence epidemiologist with expertise in prevention science, psychosocial measurement and behavioral health equity research and interventions. In the last decade her work has focused on developing environmental strategies and structural interventions for violence, alcohol, tobacco and other drug prevention in high-risk settings. Dr. Furr-Holden is the former Director of Prevention for Baltimore City. Dr. Furr-Holden’s research is grounded in the rubrics of epidemiology and psychometrics and consistent with principles and practices for understanding social determinants of health and health equity. Dr. Furr-Holden is a C.S. Mott Endowed Professor of Public Health at the Michigan State University College of Human Medicine Public Health Division.