Center for Ethics and Humanities
in the Life Sciences

College of Human Medicine

 

 

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Are Researchers Ever Obligated to Provide Individual Research Findings to Non-participant Third Parties?

A consensus is emerging that, in some circumstances, researchers have obligations to return individual research results to research participants. Recent methodological advances in genetics research suggest that researchers will increasingly uncover potentially pathogenic, actionable information relevant to individuals, such as family members of participants, who never involved themselves in research. Are investigators ever obligated to provide findings to these non-participant third parties? What could explain such obligations?
Allan Loup, JD
Regulatory Affairs Specialist, University of Michigan Medical School
Recorded January 15, 2014
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